Monday, January 19, 2009

This is a hard thing for me to write about but writing has always been a way for me to express my emotions. Many of you may already know about this and some of you may not. Keagan was born with a multicystic kidney. One of his kidneys is perfectly normal and functions like it should. The other kidney has no function and never will. The kidney never formed properly and is made up of large cyst. We found out that something was not right with his kidney when I was 15 weeks pregnant. So every month I would go to a specialist to have a sonogram done to check his kidney function and growth. I remember when we found out that something was wrong. At first the doctors where not sure if the kidney with cyst would affect the normal kidney. If that happened then he would need a kidney transplant right after he was born. Thank God that was not the case. Everything can always be worse. Since he was born we have been following up with a urologist. In early December Keagan had a MRI done to check the kidney for any new growth or change. Since he is so little he had to be sedated. Sean and I had to take him into the room and hold him while they gave him the gas to fall asleep. This was really a hard thing for Sean and I to witness. We received the result back from the MRI and found out he will need the non functioning kidney to be removed. I know that this will be better for him in the long run but it still pulls at my heart that he will have to have such a detailed surgery. The Dr. wants to wait to do the surgery when Keagan turns 6 months old. He feels that his body will recover better at that age than now. I feel bad that all these things are happening to him. He is the sweetest little boy. You never want anything to be wrong with your child. He has truly changed our lives. I can remember finding out I was pregnant, feeling those first little kicks and watching him grow on the sonogram every month. I will never forget the exact moment he came into this world, into my life. Seeing him for the first time and thinking that he is all mine. My perfect little baby. For those of you who are mothers, pregnant or trying to have a baby, enjoy every moment! You never know what life will bring you! Life changes day to day so take a deep breath, close your eyes and take everything in! Thanks for letting my share this and please keep us in your thoughts!

1 comment:

Rere & Manz said...

Hi just wanted to know how your little boys doing now. My wife and I are parents to premie twins born 24 weeks early. They have turned 1 and at home though my son is on oxygen and feeding tube. We've now found out that he too has cysts on his Kidney and will be going in for further tests..Ive been surfing the net to find more info but its difficult. Anyways, hope all is well with your precious bub :)